I have to say, I am so proud of Kayla. She is just taking all of this with so much pride and grace. She continues her eagerness to please every person she encounters and is just such a joy to all who get to have her as a patient. I am told over and over how well she did and how much they love her. Of course I love her, but I'm her mom! It's so sweet to hear people reassure me that she is indeed special. Not just in her momma's eyes. God, I love her!
The only real news I have to share from today is that there was ZERO change in her audiology exam. She still has the exact same "minor" high pitch hearing loss in one ear. We are all thrilled that this has remained stable.
Look at this audiology equipment
I can't believe I am admitting this in writing... I allowed Kayla to play hooky today on psychology. She was so upset about having to go for another 3 hours today. ( I think I forgot to mention she did 3 hours yesterday?? ) I would insist on it if it gave her coping skills for life after treatment, but for whatever reason, it does not. It's more about how we act as a family. For example: "When we argue, do we throw things?" "How often do we do outside activities as a family?" etc. Also math questions? Ugh. So frustrating. How does SJ miss the mark on this one??? I guess they need this for their research, but I strongly feel this just does not pertain to us as a family. I wish they did offer coping skills though. THAT we all could use. So, I did. I let her bail. Call after call I ignored. I know... BAD mommy. But she needed and wanted a break. I happily gave her one! Instead, we headed on over to Mud Island to enjoy the gorgeous weather. We got out and walked all around. It was a lovely break in the day! Now that is psychology. ;)
Enjoying the sunshine at a park we found on Mud Island
Now, here is something to make you chuckle (or for some of you, cry). I finally got to take a picture of the Memphis Recycling Center. Yes, this is it. I promised a few people I would try and take a picture. Here you go! (the top of these huge trash bins read "Recycle Memphis") Crazy, huh?!
Tomorrow Kayla will have her two final procedures before we meet with her Oncologist, Dr. Gajjar. At 8:30 Kayla will get her "sleepy medicine" happily and be wheeled away for a painful Lumbar Puncture. Ouch! This will make sure that there is no change and that her spinal fluid is still free of any nasty cancer cells. While she is sedated she will also have the cuff from her old double lumen line removed. The docs have agreed that the skin is not heeling over it the way it should have so it must come out. We are all happy about this being OUT of her body once and for all. Some hospitals remove it, some leave it in. To me, it is a plastic foreign object and should not be left in. Kayla's body agrees with momma on this one. So, while she is asleep, the plastic will be pulled away from the skin where it has attached and she will be carefully closed and let to heal... finally! We look forward to that!
Tomorrow is also a very big day for someone else. Denny will be taking his CNA certification test. It will last all day and he will get results immediately when it is over. I just know he will knock this out of the park. He is a rockstar.... just like Kayla. :)
I promise to post news as soon as we know anything. Thank you so much for all the love, prayers and constant support you show us. It means so very much!!!
Love, from Memphis