Unfortunately Kayla lost more weight. Fortunately, it will not slow down our plans of getting her home!
Kayla's Spine MRI and LP are both CLEAR! NED. Hooray!!! Even with the weight loss, they are confident getting her home will only help increase her "normal" appetite. Dr. Gajjar asked, "So, when do you want to leave?" Gosh, those are beautiful words. Tomorrow, the hospital is closed (except for the med room which we will not be visiting) so nothing will happen. Thursday, there will be a final assessment with OT and then Kayla's line will finally be pulled. She will be swimming in about 2 weeks! We can't wait!!! Just wanted to pass on this fantastic news and thank you all again for your constant love, support and prayers. You have all kept us lifted and made us remember that No One Fights Alone.
We will be scheduled to return to St. Jude in 3 months for a repeat of these scans. I pray for patience as I try and deal with the upcoming scanxiety I will for sure experience before each and every visit back here. I pray for a protective shield to keep all negative waves away from me and to somehow keep my filter as I deal with returning to the real world and leaving the bubble of St Jude and the friends I now consider family. For those of you who always have found a way to know just what to say and how to be a constant emotional support to us, we can't wait to thank you in person! It truly is an invaluable gift.