Let me begin by just saying how wonderful Kayla is doing. We are so very proud of her for her unwavering determination to live like a "normal" 8 year old girl. When she is not eating, she is thinking about her next meal. Kayla's weight still continues to bounce between 35 and 36 lbs. I do believe she is growing right now though. Her legs are aching a lot. Of course that can also be a side effect from treatment, so it's really hard to know. Everything can be a side effect.
Right now, we are just past the point here at home where we were in March when we were about to return to St. Jude for Kayla's continued treatment. There were so many unknowns then. I remember all to well the feeling of sadness and fear as we were about to go down a horrible and very unknown path. Watching Kayla in her last few days home starting to thrive again only to have to face it all over again was so hard. So, this past week has been glorious. As her hair begins to grow to the longest length it has been since January 1st, I rejoice. The brows are dark and full. Eyelashes almost half of what length they used to be, but gloriously just as dark and thick. We have been out and about a lot lately. Sometimes we notice the looks. Often followed by smiles. I just want to say, it's "ok" to say hello! We want to know and thank all of you in person. You all have become like family to us. We couldn't have made it this far without all of you. Kayla is very proud of how far she has come and enjoys very much meeting people who have grown to love her too. We realize it's an honor to have the support we have. Boy do we love you all!!!!
Last week we took advantage of the beautiful weather and headed out for a few fun hours at the beach with our friends, the Brechts. We flew kites, played and of course, ate. Such a beautiful day that we will always cherish.
|Anthony, Katelyn, Kayla, & Lindsey (each 9 months apart) - Basically, cousins.|
This is the spine of a fighter. She is a teacher. A daughter. A sister. A friend.
Kayla and Lindsey freeeeezing in the morning. Gotta love our Bay Area fog :)
We have had many special moments at home full of love and gratitude.
Over the past two weeks, there have been way too many struggles and losses for some of our dear friends at St. Jude. We all know being there that it's always a possibility that when we say "good-bye" it could be for good. But for some reason, it never felt that way to me. Seeing these kids running and playing. Laughing and living.... it just never seemed like good-bye was even a possibility. How do you go from playing one day, to... not? Then it hits. That feeling. That awful reminder of how demonic Cancer really is. A reminder that no one is really out of the woods. And no one is ever truly safe. This is why we need a cure. Come on St. Jude! I know you are working on it, but could you please hurry it up? Enough is enough.
I have my eye on my own project that I look forward to beginning in the near future. I hope it is a success and raises a lot of money toward Cancer research. Of course it's a book! I can't wait to find time to start it. Maybe when school starts? Haha. Riiiight.