Enjoying every second!

What a wonderful time we have been having here at home. I have good news to report! Kayla has gained almost 1.5 lbs!!!! Being home has served her well.

Kayla is SO proud of herself! She is having a blast sleeping in, cuddling with her meow-meow, playing outside, mani-pedi's, going to Tommy's Salsa (almost daily, I might add... only missing one day), and just being a KID! It's been heavenly. :)  We have been so busy in the past while living here.... it's a strange blessing just being able to be home and enjoy it together. I wouldn't wish cancer on my worst enemy, but how many families actually get to do this AND enjoy it?  I am aware of this tiny blessing and I am determined to enjoy every second of it.

Today, I had a few visits with our doctors back home. Friendly and much needed check-ins! Just such a stress-reliever to me to know that we all have a team of doctors back at home ready and willing to help Denny, Anthony and I if we should need it during this next long phase. Where Kayla has her "team of doctors" at SJ, they can't really help us.... Sure, at St. Judes, they can pull out stethoscopes and look in our ears & throats. They can take our BP's even. They have become like family!!! But... they are Kayla's docs. "Legally". So, it's a HUGE stress relief to me to know that we are blessed with medical support from back home. Lord knows my cracked eyelids need it! I am allergic to my own tears! Have you ever heard of it? I hadn't. I actually saw a dermatologist before all of this about it. If I cry and rub, the tears spread on my skin and it becomes inflamed, red and itchy. Now add THAT onto what we are going through. It's one of the things that has kept me up at night. Even with a car, you can feel sort of isolated. You know how long it takes to find a doctor. And to find a GOOD doctor that knows you and that you trust? I don't have time or energy for that type of a search. Plus who knows what that co-pay or office visit might cost! Yikes. Ok, so that is one thing checked off the list. "check". I knew I shouldn't worry. Denny for sure knew. Why don't I have that sense of calm? Well, he doesn't have dry, cracked itchy skin...... and already high blood pressure.  :) *Now.... if Anthony ends up in an ER for a bone injury that is a different story. Lets hope not!

Lets hope that Kayla continues to gain while here. If she keeps this up we are GOOD!!! I am so excited over the momentum. She is doing fantastic! She is even trying to wean herself off of the Zofran (for nausea). This kid is just like me. She hates meds!

Just like any other day.  We will look to these pics longingly soon enough.........

 Lunch at Moylan's!

 She sure does have my feet! Esp. that baby pinky ;)

 Such cutie pies!

 Claire and Kayla

 

We are soaking up every second........ She will need these photos so much soon!