Day -2

So, today started out with a little bit of a twist. Last nights labs showed that Kayla's potassium levels had dropped. Not really too big of a problem. They would give her potassium supplements through her IV bag to get them back up to where they needed to be and we would re-check in the morning. Well, in the morning, her labs showed that her potassium hadn't responded at all to the supplements and also, her magnesium had dropped as well. So, more potassium and now magnesium would have to be given again and her blood re-checked to make sure her body was in a safe and stable condition to receive her chemo.  Each bag hung for about 2 hours each and couldn't be given at the same time. Once that was complete and her blood was re-checked, all was clear. Today, Kayla received her FINAL doses of Cyclophosphomide and Mesna. Kayla is a trooper and her body has remained stable since. Unfortunately, but not unexpectedly, her body still continues to have fevers that come and go. Multiple tests have been given to determine what is causing them. Instead of getting annoyed and assuming they are "normal" like always, I am finding myself extremely grateful that they have all continued to come back normal so far. You never know! Fevers around here are no joke! Thankfully, all is good so far!  Kayla received her VERY special legacy beads today. She will be very proud of these ones once she is feeling more like herself again.

The Green Beads are for the Chemo she has had this round (an early one for the Vincristine she will get on day +6). The blue bead is for Kayla's stem cell rescue. The Flower is for the end of BMT Transplant, meaning the last time she will receive her own cells. The beautiful silver one? That is my favorite. That means "NO-MO CHEMO"!!!! That's how they say it here.  :)  How beautiful is that silver bead?

Skyping with "Sissy"

Tonight, Anthony built a fort in-between the two twin beds. He was so excited to sleep under it calling tonight "the best night of his life". That brought me to tears. Really? Not sure if it was because this shouldn't be the best night of his life or because it probably really has been the best night in a really long time... Just ready to create nights ahead when we are home that blow this "fort" out of the water!

When you are only four, it's the simple things.  Out of all of the things that have happened here, I bet he will always remember this fort!

Good night Anthony......