Tomorrow morning, we will get to the hospital very early for OT and Kayla's GCSF. The schedulers have been kind enough to schedule our appointments around the concert. Yes, you read it right! To start off the 50th Anniversary Celebration, Jordan Sparks will be performing for us all! How fun, right? Kayla is SO excited. She loves her music. I am hoping to get there as early as I can to grab us some good seats. I am thrilled for Kayla because she truly deserves this experience so much.
Today, we had a very long day at the hospital. Basically it was a lot of waiting around as it was determined that Kayla would need Blood and Platelets again today in addition to her GCSF. The wait time just to get the first bag of platelets hung was more then two hours. So, while Denny was at the other side of the hospital donating his, we were in room 26 in the Med Room watching the bag slowly drip. drip. drip. It's too bad that we can't be direct donors. Kayla asked the nurses if she could please get her dad's blood "because she knows it's healthy and that he has a big appetite". We all laughed. She is making a huge effort to try and eat now which is fantastic! She is really trying and we are very proud. Tomorrow is most likely her last bag of lipids, so we need her to really amp up that appetite quickly. This morning she was so excited about it. Tonight, her enthusiasm has lessened.
Waiting for the platelets to drip. That's them in the yellow bag.
My view for 5+ hours today
Almost finished. Time for Blood now. Only 2 more hours!
Drip. Drop. Drip. Drop. Thank you to the donor for making my baby feel so much better!
Back at the Target House, the Dunk Tank is in place. There will be professional athletes sitting in there tomorrow night! That should be FUN.
Tonight, when we finally returned at 6pm from the hospital, Kayla had a very special surprise waiting for her. A beautiful handmade butterfly... it is the sweetest thing. Alli, Kayla loves it. Thank you! Alli has started a foundation called Butterflies For Courageous Kids . I think it is so amazing all of the special things that people have done like this after going through this battle or knowing someone who has. Also, there is Project Maisie Hugs and you just recently saw Kayla's JOY when she received one of the Joy Jars from Jessie Rees Foundation where kids battling are encouraged to NEGU (Never. Ever. Give. Up.) Last, I have added a picture of Kayla enjoying her Netbook that she got from Keep Kids Connected which was started by a now 16 year old cancer survivor named Caitlyn who was diagnosed at 13 yrs old. She was given a Netbook and found that being connected with her friends or family that couldn't be there during her treatment was what made it more bearable.
Look at how pretty this is! See Kayla proudly displaying her legacy beads in the middle? Love it!
Here is Kayla with her Maisie Doll... and of course, she wanted a picture of Meow-Meow in it! She misses him so much!!
Kayla with her Joy Jar :)
Kayla having fun on her Netbook! She LOVES to Skype.
I completely understand how these wonderful foundations or non-profits are started out of LOVE and the desire to spread hope to all of the courageous warriors out there. I haven't figured out yet where all of this will lead me, but I do know that I am for sure spreading the need for awareness. If you or someone you know is battling, please look into these wonderful foundations. People are so GOOD.