This morning we woke up and drove over to the hotel to pick up Carolyn. We headed on over to the hospital. The first appointment was for Kayla to have her "pre-practice" with Amy from Child Life. I can't remember if I mentioned it or not, but she has to practice 3 successful times while still NPO (no food after midnight) before they will clear her for radiation while being non-sedated. She will still need to be NPO all three times because they will be booking the sedation team as a back up in case she can't do it. They have to keep her on schedule! She was just supposed to lay on the table this time and have the mask on to get the feel of it. No big deal. It shouldn't take long at all. Then, we will all be able to walk back while Kayla gets her sleepy medicine. Ok, back to my story... So, this morning she walked back by herself with Amy while Carolyn, Denny, Anthony and I waited and played. We were out there for a while and I saw Kayla walk by the door (through a window) down the hallway. I told Den & Carolyn to be ready, that they would most likely call us back in a few minutes. Well, 15 mins easily passed and I said to Carolyn, "well, maybe they just sedated her and she is already in Radiation". I explained that it was odd that they didn't come out to get us, but that I wasn't worried AT ALL because I totally trust them! I know that team and they all ROCK. So, a nurse came out to tell me just then that they were about to call us back in a few minutes. She explained that they were able to practice a lot of things today, but not to worry. When I explained that I thought they had already taken her in, and that I wasn't worried one bit, she said, "oh no... we would never ever do that without you being there". I smiled and the nurse said she would be back in just a few. I shrugged my shoulders and smiled and we waited. A few minutes later, Kayla and her entourage of at least 10 people all came through the exit door of the recovery room. She had this HUGE grin on her face. Amy and Kayla announced proudly that SHE DID IT!!! She actually did her first real practice without being sedated and she did GREAT!!!!!!!! Everyone was cheering and clapping. It was one of the most wonderful moments I have had in a long time. It was such wonderful and incredible news! I have been smiling all day!!!!!!!!! So, now she only needs to do it again Monday and Tuesday, NPO, and she will be able to eat breakfast again. It's wonderful news because that means we are one step closer to hopefully getting some weight back on this girl. We are just so so excited. It's a huge accomplishment. She told us it wasn't too bad. She got to listen to Dr. Seuss (books on tape). Remember, we haven't been in school since October really... so there is a little regression. She will be requesting Junie B. Jones in no time! haha
Carolyn got the quick tour of both Target houses yesterday. We played on the playground a lot. Today she got the tour of St. Jude. It really is an incredible place!!!! Kayla got her artwork hung in the E-Clinic! (another proud momma moment)
|I wouldn't have put both pictures in, but the one showing the art without showing the artist was a tad blurry. I wanted to make sure she got credit for her work. ;)|
We will miss you girl!!!!
Thank you so much again for all of the kind words, love, prayers, and support!
Love, from one blessed momma