It was a beautiful day out today! It has been just gorgeous out lately... it helps when keeping spirits high.
Kayla got her first blood transfusion early this morning at 12:45am. She woke up feeling a LOT better. Getting blood transfusions are very common around here and apparently make you feel so much better. We can only relate it to the vampire stories. They are drained and lethargic and after a good feeding they have super powers. I swear I have seen kids do a 360 after having a blood transfusion. So, that was a good thing. Also kayla was able to go to the bathroom after 6 days of nada. The meds we have asked for are starting to kick in. That is good! That is one thing that we can be happy about... one less "pain" to deal with. Even after the meds kicked in and a few trips to the bathroom had occurred, we had a good weigh-in! Kayla was up to 17.2 kgs. We were thrilled. Finally.. the few bits extra she is able to get down and the drive to survive is back! We are so so so happy!
Kayla's fever remained gone. We are still waiting on cultures to come back. There is no update on when we should know. I would imagine tomorrow some time. They are waiting to see if anything is growing. That would mean that they need to keep Kayla inpatient longer to treat her for whatever it is. If the culture comes back negative and she is still fever free after 48 hours of admittance, she can be released again. It's a wait and see game. The good news is that she is feeling so much better. Her counts are still Zero. The general way this goes (for those of you like me who have never witnessed this) is the counts drop to zero quickly and then they rise slowly.
Kayla got her second mini dose of Vincristine today and her G-CSF push. She ate a decent lunch, finally, consisting of ravioli's and tomato soup. I am seeing a pattern here. She is liking tomato sauce. I also know what happens. She over-doses and will not like it by next week. Almost a guarantee! I hope not though! I'm always in search of a go-to food we know she will eat. I haven't found ONE yet.
Lipids will be added to her TPN diet in just a few moments. We look forward to seeing her cheeks, shoulders, back, stomach, hips, bottom and thighs start to fill out even a little!
Thanks for sharing in the love we have for our sweet girl.... Kayla Rose <3