Kayla has an MRI of her spine on May 3rd. She then has a sedated MRI of her brain and Lumbar Puncture schedule for May 4th. This is part of the protocol. The doctors look for any changes.
Today, Kayla had PT, School and her usual visit to the Medroom for her GCSF. Tomorrow, we will find out what her counts are at. Yesterday, they were at 100. So, we are on the upswing again! Hooray! Her energy is very good considering. Her nausea is mostly under control. All is as good as it can be. We were told by a nurse who has been in the medroom for years, that she was working there before they gave GCSF shots. She said that it used to take months for the counts to come back on their own. So, one more blessing! :)
I also heard of a girl who lives in Lebanon. She has been a patient since she was very young and is almost 18 now. This special girl has an enzyme deficiency. She is unable to get a transplant to help her. The medicine that she receives is given twice a week and will continue her whole life. Each dose is $250,000.00!!! So, that's 5k per week! St Jude has to have it on hand when she visits here for her check ups. Can you even imagine??? She would not survive without this medicine. I am still amazed by that story. Like we are all aware, you see and hear it all here at St. Jude. The rarest cases. The miracle stories...
As I love to do, here are some pics from today.
Waiting.... we do this a lot!
Simple decorations! Easy enough to recreate if you have a craft room.
Almost 90 degrees. Humid. Loving the fountains!
With Aj's new haircut, he sure looks ever more like his sissy! Wow. Who's who?