Monday, November 21, 2011

PICU- Day 4

FOOD:

Today, OT cleared Kayla for some food! She can't have really chewy things, but she can have soft chewable foods and any liquids. She just finished a nice meal of peaches, Oatmeal, buttered noodles, apple juice and a strawberry smoothie. (She almost finished them all!)
Peaches..... YUM!
 Monday's accomplishments:

* ICP Drain was removed from her scalp! YAY!!!
* Kayla was able to sit at the edge of the bed and walk to the chair with help
Soooo sleepy!

* Kayla read the rest of her cards that her classmates made for her. This time, she was reading them and opening them up herself! She was much more alert and really REALLY enjoyed them so much.

                             Me       You    "Nothing could break us apart!"
Pathology update:
* The oncologist came in and told us that we will not get the pathology report until WEDNESDAY. I know a lot of people are wondering. At first they told us Tuesday, but there are some additional tests that take time. We want it to be accurate!
Kayla smiling. Her jaw is still really tight, but she is able to move her mouth so much more. She even gave me a good amount of sass today! That's our girl!!! 










15 comments:

  1. Thanks for the update. So nice to hear that Kayla is doing well. Can't wait to welcome her back to Mrs.Boerio's class. We all miss her here.

    Pia (Gavin's mom)

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  2. Go Kayla! You are making great progress! Can't wait for you to come home! Love and miss you!

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  3. So sweet. She's a doll. Yay for food! Yay for ICP drain removed! She's doing so well. And you Annie (Denny too) are just amazing. Giving us these valuable heart felt updates during all the emotions you are going through is just above and beyond. But I have to tell you, hundreds of us are on the edge of our seats refreshing the blog all day, looking forward to the next update. In my prayers tonight: seeing the word benign on your blog title tomorrow. Hang in there, you are so close to the light at the end of this tunnel and the rays of sunshine you will feel each and every day thereafter. That day will come. You will sleep without worry or fear really soon. Lots of love to you all.

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  4. What great news, more baby steps accomplished today!! So glad she is starting to eat real food! I give extra hugs and kisses to Sophie every night and think of Kayla. Sending lots a prayers for good news on Wednesday.

    Hugs, Lisa

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  5. We are all so happy to hear all of the great news on Kayla's rocovery. We are all so proud and amazed with the strength you all have
    (especially Kayla). We are thinking of you all and sending lots of love your way. We hope each day just gets better and better.
    Love,
    The Vorhies Family

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  6. Thank you Annie so much for the update. I'm sitting on the edge of my seat ever day waiting to hear the updates. I love the pictures. It is wonderful to see her and see her eating. Hang in there. With love, Susie

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  7. We are out of town but following Kayla's progress very closely. Bless you for the posts - we have cried, laughed, and been inspired by them. We are above all happy and amazed by Kayla's progress! All our love, The Gouldys.

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  8. What a great day! Food must have been the highlight of the day, followed by movement. She's such a trooper, just like her parents! I'm sorry you have to endure another day without the final highly anticipated diagnosis of the tumor, but Wednesday will bring you much to be thankful for, when you hear the words BENIGN! Love and support continues to rage strong for TEAM DEHNERT, we love you all so incredibly much. Much love Jayna!

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  9. omg. She is doing so well! Its the little steps that are so important. Eating is amazing, and reading, awww. You look so happy that she is feeling better in that picture. Hope the results come back great tomorrow!! Keep us posted!!

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  10. Thanks for all the great updates Annie. Kayla looks amazing! I am so happy to hear how well she's progressing - what a trooper! She really is a strong, beautiful and amazing child. You and Denny should be proud!

    Crossing my fingers you are home for Thanksgiving!
    XOXO,
    Erin S.

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  11. Love the pictures, love the post. As always, Annie you rock for keeping us all updated. Thank you. We are so proud and so happy that Kayla is doing so well. That's awesome that she can eat and sit up and making great strides. We are so proud of her. What an amazing girl she is! Thinking of you guys tons!

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  12. Jake was so upset that Kayla couldn't eat, he said he couldn't imagine going that long without real food. He is thrilled to hear that she was able to have real food again. So are we! Yay for Kayla. Our thoughts and prayers are contstantly with you! xoxoxo The Hobson Family

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  13. Kids are so amazingly resilient. Great update. Positive vibes wafting towards her. xx Cate

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  14. Still praying hard for a speedy recovery and clean free biopsy! Hang in there beautiful girl! XOXO - Charla

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  15. Thanks for keeping us all updated! As always, I'm sitting here impatiently waiting for the next update, lol! Our thoughts are with you all! Love Diana, Tomaz and Isabella

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