Happy Mother's Day

My beautiful Mother's Day gift from Kayla

Thank you for all of the lovely Mother's Day wishes. Kayla is doing "ok" today. She is sleeping a lot and getting sick a fair amount. I skype in with them when I can and Denny updates me any time there is change. The only thing that makes me feel like it's ok to be away from her today is knowing that if she isn't getting sick or going to the bathroom, she is sleeping. Other then that, there really isn't too much anyone can do.... we just sit and wait. This is when the minutes seem like hours.

Anthony and I had a lovely Mother's Day lunch here at Target 2 with our good friend Laurie! She was able to get out and have lunch while Connor and his Dad were at the hospital getting his GCSF. Laurie and I both were happy because we got to sleep in! Anthony ate a little bit and then ran off to make some Mother's Day art for me and of course, baby puppy. That darn puppy gets as much love as I do! It was nice because we got to just sit and talk. Just the two of us sitting and talking about all of this. To have someone who is going through as close to what we are is such a sad and wonderful blessing. Sad for obvious reasons... no one should have to go through this! But, such a blessing we can totally relate and share our worries, fears and the things that keep us lifted.  After lunch, Anthony and I went to a couple of parks and finally settled over at the Ronald McDonald House to play for the first time. The playground was awesome! Anthony had a BLAST. We both said we can't wait until sissy can come and play there too!  We had the place to ourselves. It humors me to watch him in action. He plays so well by himself. He talks out loud. Makes up games. Challenges himself constantly and we both just laugh! He is a hoot.

This morning, Kayla's puffiness started in. Same as last round. Her eyelids were almost swollen shut as we Skyped. She still seemed in good spirits despite constantly rubbing them.  This afternoon, Kayla's temperature spiked to 101.7. Also, she wasn't getting rid of enough fluids. We were happy because we thought it was going back down (99.3) but then wham... back up to 102.7.  They are monitoring her fluid release very closely right now. They could give her meds that would help with it more, but they are hard on the kidneys. We all agree that her kidneys are taking enough of a beating right now and we will keep doing what we are doing and watch it closely.  Right now, she is sleeping.

I hope that all of you were able to enjoy today and do something special. Time with your kids, grand kids or your own mother? Anyway, I hope it was wonderful.  To my mom, I love you. Thank you for literally holding down the fort for us while we are gone. I am so proud of you and thank you for being such a role model to me. I love you with all of my heart! To my mother in law, Cheri, thank you for always being there for us and the kids. Your smile and your heart are the first thing that come to mind when I hear your name.  We love you! We miss you both so much and wish we could be together today.  Just glad you are both in the front seat of our cheering section!