What a wonderful and busy day! Lots of friends rotated through our doors to give hugs and well wishes. It was so nice for Kayla to have a few very special visits from some of her dearest friends! (I just wish I had taken more pictures... sorry!) Here is one from Antonia and Claire who came bearing matching pairs of pink fuzzy ear muffs for the cold weather that is to come. Gosh second graders are cute!
Through talking with friends today about some of the things that Denny and I have been reading about online from St. Judes, (which hadn't occurred to either one of us yet) is something of importance and should be shared. It's just something that we should all keep in mind for anyone who will be or is battling a long-time illness. Where get well soon wishes are totally appropriate for someone healing from surgery, it isn't so for someone who has a longer road ahead of them. We all thought this was so interesting and it just hadn't even crossed our minds. So, instead of saying, "get well soon" now you can say, "stay strong". For some of the kids at St. Judes and other treatment centers, they can be there for up to three years or longer! So, get well soon becomes redundant. Stay strong has so much more power and love behind it. Don't you think? I will keep this in mind forever. Words just have so much power.
In the works:
One of the things a few of our friends are working on are some t-shirt and wrist band ideas. We have come up with the PERFECT design and logo. I can't wait to share it with you all. Heck, I can't wait to have one of my own! We know that what lies ahead will be so tough, but we know we will be looking back soon with even more love in our lives then we could imagine.
How is Kayla?
Last night Kayla woke up at 2am screaming in pain. She just couldn't get her body to relax and her neck was in spasms. So, after almost a week of not needing hardly any pain medicine, we decided through exhausted eyes that she should be given a tiny bit of Valium to relax her muscles. It helped a little but she was pretty uncomfortable even still. I knew that today would be a long day between all of the people coming and going all day. As soon as the door shut after the last of her amazing friends left, she just broke down. She was in so much pain and was just so tired. Dad took her downstairs and turned on her heating pad for her neck (that usually helps a little). He read her a story and now she is snoozing away. I will have to wake her up for dinner in a little and hope that she is feeling a tad better by then. We promised her that tomorrow would be super low-key and there would be no visitors. Just the four of us packing and getting ready for the big trip. After all, it's all about what is best for Kayla right now. Today was awesome, but tomorrow she will need her rest. Anthony will be at school for 3 hours in the morning and then we will have the rest of the day to spend hugging him and having some good quality time before we have to say, "see you soon" to our little guy.
Ok, forget snoozing. I can hear her downstairs crying out in pain, "oooowwwiiieeee back of neck" over and over. I hope she isn't regressing. Is that possible? I have a lot of docs and nurses reading this. Feel free to throw us some advice.
Poor girl! :(