Ok, so let's backtrack! Stem Cell Harvest COMPLETE!!!! YAAAAAAAY!!!!!!!!
Today started early. We took the 6:30am shuttle over to the chili care center to be admitted for blood work. More blood work! Kayla was a trooper. She really was. We brought her over for sedation and all went well. Denny, Donna and I went over to the cafeteria for some breakfast and to just take a deep breath for all that was to come.
|I don't usually post "these". This is being strong when strong is your ONLY option.|
|This is the machine that MAKES the magic! Stem Cell Transplant....... WOW!|
|I know, Eeeew. BUT, this is going to help save our baby!|
|K<3 The "double lumen" We love you Kayla!!!!|
|Femoral line before it was removed|
Tomorrow will be Kayla's first day of Radiation. We thought it was going to be Thursday. They moved it up because the numbers were so good. That's fine. We will be ready. The only bummer is that it's at 12:45 and she has to be NPO (no food again 8 hrs before) again tomorrow. She understands that once she can hold totally still during radiation, she won't have to be sedated (and without food!) anymore. That is our goal! Radiation will last about 30 mins. They are allowing an extra 15 mins tomorrow to make sure that the double lumen is in the perfect location as well. (I'm sure it is).
Also, tomorrow, St Judes has their huge annual gift give away. I am hoping we can sneak over there during radiation to do some secret shopping! Supposedly the Target House has a basement where they can store Christmas gifts! I just don't know how we could possible sneak it onto a shuttle and not let her see it on our way back. I will try and find a way. This is the big give away event that people rave about over here. I honestly don't expect or want anything. Just being here is such a gift. I can't imagine anything better than just getting Kayla well. Spending the rest of our lives watching her grow and have a future is all any parent could ever want. As for Kayla, she wants some light up shoes. Thank goodness we have Zappos and an address. Done!
The princess is demanding to sleep on the couch tonight. She doesn't want to miss any action I guess. I am fine with that. My friends will laugh as they read this part. It is 10:45. Kayla is very tired but awake! This is really funny b/c at home, we are a strict, in bed at 7:30pm house hold and have always been that way. I keep reminding her that this is only the deal here at the TH and at home, things go back to normal!!! haha
Good night all!